Retina
Hong Kong
Retina Hong Kong (formerly known
as "Hong Kong Retinitis Pigmentosa Society") is the first and at the moment the only organization of the kind
among Chinese communities around the world. It is registered as a non-profit
making organization under Chapter 32 of Companies Ordinance with the
Companies Registry and is granted with tax exemption under Section 88 of Inland
Revenue Ordinance by Inland Revenue Department. An audit system is also
established. Retina Hong Kong has also invited a voluntary legal advisor giving advice on
legal-related matters.
Vision
and Mission
Organization
Services
Membership
The
Council
Scientific
and Medical Advisory Committee
Retina Hong Kong's mission is to -
1. provide medical and rehabilitative services to people with inherited retinal degenerative diseases in Hong Kong;
2. gather all varieties of information concerning inherited retinal degenerative diseases from all over the world and to bring such information to the attention of patients, their family members, medical practitioners, optometrists, geneticists and scientific researchers;
3. promote public education on 'eye care' and to raise public concerns on people with inherited retinal degenerative diseases;
4. exert and encourage medical and scientific researches on cause identification, prognosis, treatment and prevention to inherited retinal degenerative diseases in Chinese communities; and
5. bridge between people with
inherited retinal degenerative diseases in Hong Kong, the
Mainland and other Chinese communities all over the world.
The top decision-making body of Retina Hong Kong lies with the General Meeting which has embodied a Council responsible for daily operation. There are distinctive committees reporting to the Council. They are -
Science and Medical Advisory Committee - provides medical and scientific advice to the Society which is jointly advised by some medical practitioners, optometrists, geneticists and scientific researchers.
Members Service Committee - responsible for membership management, home visit and liaise, group works and recreational activities, daily operation of the Jockey Club Visual Rehanbilitation Centre, etc.
Information and Public Relations Committee - responsible for producing and distributing information and publications, public education activities, web site management, contact with other entities, policy advocacy and right issues.
Finance Committee - responsible for fund raising, budgeting, and finance management.
Volunteers Coordination Committee - responsible for recruitment, training, organizing and development of volunteers.
Personnel Management
Committee - responsible for recruitment, wage and
benefit, appraisal, training of staff team.
Retina Hong Kong has operated the
Jockey Club Visual Rehabilitation Centre and provides the
following services to people with inherited retinal degenerative
diseases, their family members and other target groups in the
community -
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To gather all varieties of
information about Retinitis Pigmentosa and other inherited
retinal degenerative diseases from all over the world and to
bring such information to the attention of patients, their family
members, medical practitioners, optometrists, geneticists, and
scientific researchers;
To answer enquiries about inherited retinal degenerative diseases and to make referrals whenever necessary;
To arrange medical and rehabilitative talks on inherited retinal degenerative diseases;
To keep close contacts with
medical practitioners, optometrists, geneticists and scientific
researchers in Hong Kong and all over the world and to promote
and encourage researches on cause identification, prognosis,
treatment and
prevention to inherited retinal degenerative diseases;
To co-ordinate, manage and promote the Hong Kong Patients Register of Retinal Degenerations which will establish a territorial register with clinical and genetics information of patients of inherited retinal degenerative diseases;
To purchase and distribute medical supplements for members and patients under the advice and guidance of medical practitioners..
To gather information about visual aids and to provide training on the use of such visual aids;
To identify and purchase suitable visual aids for members;
To provide all-round rehabilitative services to members on aspects of occupation, education, and daily living;
To arrange sharing groups for mutual understanding and encouragement of members on positively coping with the disease;
To organize recreational activities for members;
To assist individuals in striving for equal opportunities in society.
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Full Member: the people who are affected by inherited retinal degenerative diseases patients, their immediate family members may apply to be a Full Member. A Full Member is a voting member and is eligible for election to the Council.
Associate Member: every other person may apply to be an Associate member. The Associate Member is not a voting member and not eligible for the election to the Council. A Associate Member may be invited as a member of the Council.
Honorary Member: The HKRPS will invite individuals as Honorary Member of the Society.
Honorary Legal Advisor
: Ms. Brenda CHONG.
President -- Mr. Kin-ping TSANG.
Vice-President -- Mr. Henry Hung
Honorary Treasurer -- Mr. Leung Chat Kan, Jackie
Honorary Secretary -- Ms. Mercy WONG Sau Ping
Council Members --
Mr. AU Kwong-chung,
Ms. Chan Yuk-wa, Mabel
Ms. Chan Lai-yee, Emily
Mr. Cheng King-him, Godfrey
Ms. Cheen Lin
Mr. Li Kwong-tat, David
Mr. Lo Chung-kwan
Mr. Lui Sau-yan
Mrs. Shirley Yung
Scientific and Medical Advisory Committee
In order to accommodate
scientific and medical information to our members and general
public more effectively, build up the foundation to develop
future research among Chinese RP patients, we set up the
Scientific and Medical
Advisory Committee in June, 1995.
The members of this committee are:
Chairman
Dr. Stephen T. S. Lam, Clinical Geneticist, President of Hong Kong Society for Medical Genetics, Consultant of Clinical Genetics Service of the Department of Health of Hong Kong SAR Government.
Members
Dr. LEUNG Kam-wah, Medical Officer In-Charge, General Eye and Low Vision Clinic, Hong Kong Society for the Blind.
Professor George Woo, Dean, Faculty of Health and Social Studies, Hong Kong Polytechnic University.
TO Chi-ho, Ph. D., Assistant Professor, Department of Optometry and Radiology, Hong Kong Polytechnic University.
Yip Shea-ping, Ph.D., Associate Professor, Faculty of Health and Social Studies, the Hong Kong Polytechnic University.
Dr. Joseph YEUNG, Private practice ophthalmologist.
Mr. Joseph Cho, Division Head, Research and Developement, HOng Kong Society for the Blind.